Thursday, January 29, 2009

Build Me Up, Tear Me Down

he's been doing so well in recent months. his speech, comprehension has improved. understanding and requesting for things he wants...he''s coloring with stronger strokes though fine motor skills still lacking. gross motor skills has improved tremendously. he swam on his own for several meters, even with a float it was an achievement. he was usually trashing around.

today, we saw a neurologist and he basically told us that his epilepsy is 'bad' and most likely he cannot be 'normal'. fine! i've accepted this a long time ago. my focus was always to ensure that he become independent and that he'll be looked after when i'm no longer around. however, to hear this all over again from the doctor just felt so depressing.

i was so hopeful for him. so happy and bright (even now); yet to hear this kind of diagnosis just feel so wrong and hopeless. i don't expect too much...just for him to grow up independent; to be able to handle himself in public, to have friends to hang out with.

he's fine, he's healthy, making mischief wherever he goes...we make sure he keeps hydrated, goes to toilet everyday. so, he's ok...do we need to be reminded he's not 'normal'? i certainly don't.

2 comments:

Dorabie said...
This comment has been removed by the author.
Dorabie said...

I totally agree with you, Raymond. Honestly, i think that Doctor has his own theory- his experience is only within the country so :(....Anyway, i also feel that he is developing very well and improving day by day. So have faith. And i think KaKa Ling has done a very good job in monitoring and making sure that everything is systematic for him. :)